Celiac Awareness Day: #CeliacAwarenessDay

Celiac Awareness Day #celiacawarenessday one year on. Today is Celiac Awareness Day or in the UK better known as Coeliac Disease.

It was over a year ago we found out my Daughter had it. A day we will always remember and changed my Daughters life from that very phone call from the Doctor at the hospital. Finding Out My Daughter Has Coeliac Disease. Funny thing is they were not testing her for Coeliac Disease. They were testing her for a patch of white skin that looked like an unhealed fall. (Also never properly looked into).

Celiac Awareness Day.

After six months of test. On Gluten. Off Gluten. On gluten. Also a biopsy early this year she found out for sure that she had to lead a gluten-free lifestyle.

It has not been an easy year and just as you think things are OK and you can handle it. Other things happen.

The skin on her hands now are starting to peel and I am not sure if this is the big dose of vitamin D the doctors gave her as she was seriously lacking in it or the gluten in the shampoo and hand washes.

Her head hurts from little bumps, her body itches and hands ache.

Yesterday we went shopping to find gluten-free, shampoo, conditioner, shower gel and hand wash. Things you never think about having to replace at first.

Hopefully, this will make life easier for her.

Summer holidays were the hardest. Gluten-free dining is not only harder to find, it can sometimes work out expensive.

Slot Machines. How Much Fun?

Celiac Awareness Day: What We Found Out This Summer:

Butlins Cater For Gluten-Free Diets:

We a great week in Butlin at Skegness in the Summer. The weather beautiful and eating out gluten-free in their dining rooms was a breeze.

We weren’t going to go to Butlins this year as my Daughter has coeliac but the chefs here have been amazing all week. We even got to know one by name. “Just ask for Karl”.

The first day we tried to guess which were gluten-free foods as we did not know what to do.

Then the next morning we saw a chef bring out a girl some gluten-free cereal. That is all i needed to know and asked if i could speak to the chef.

Every meal time the chef in charge came out and guided us through all the foods in the self-service foods which were gluten-free.

Anything that wasn’t gluten free like sausages, hash browns and cereal at breakfast and cakes at dinner, they kindly brought us out the back. Nothing was to much trouble.

This made mealtimes perfect for my Daughter.

Weatherspoons Gluten Free Menu:

We found that gluten-free eating out at Wethersppons is just the same price as eating gluten. Which is really good when you have a big family. They have a wide selection of meals that are gluten-free and my Daughter loved having her own gluten-free menu to pick from.

Boots Meal Deal:

We found that if you are just out shopping and you want a meal deal, Boots gluten-free is the best one ever!!

Most places that do meal deals we found do not do a gluten-free meal deal making you buy a sandwich, drink and snack separately. Working out £5-6.

Boots Meal Deal is amazing. Gluten-free sandwich, drink and snack for £3.39 My Daughter loves this one and we have this as a treat when I take her to Nottingham for the day.

Pizza Hut Gluten Free:

When we fancy a treat a home. My Daughter picks the Gluten free pizza from Pizza Hut. They are smaller than the usual pizzas we have but we usually get them on takeaway offers so work out cheaper. She loves these and says they are really yummy. Not that she has offered me a bit!! 😉

She mention last week, the only thing she misses is Chinese food. So I am now on the hunt for g/f noodles!!

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Claire

Hi, I am Claire and I created Claire Justine in 2011. I hope you enjoy reading my posts as much as I love writing them. Please leave a comment below and share your thoughts with us.

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11 Comments

  1. 13th September 2018 / 4:18 pm

    This must be hard for your daughter but it’s good to see so many gluten free options popping up!

    • Claire
      Author
      16th September 2018 / 4:48 pm

      Thanks Heather. I think it gets better and better as we go on 🙂

  2. 13th September 2018 / 11:10 pm

    It is amazing how gluten is in everything! I’m 20+ years gluten free and I promise, it gets easier!

    • Claire
      Author
      16th September 2018 / 4:50 pm

      I can not even imagine how hard it was to buy things 20 years ago Tamar.

    • Claire
      Author
      16th September 2018 / 4:52 pm

      Aww, thank you 🙂

  3. 14th September 2018 / 2:18 pm

    Aww! Your poor girl. I hadn’t thought about needing gluten-free, shampoo, conditioner, shower gel and things like that.
    That is fab that the chef’s at Butlins were so helpful.
    Good luck with the hunt for noodles x #PoCoLo

    • Claire
      Author
      16th September 2018 / 4:53 pm

      Thanks Kim. No we had not thought of this before. We keep learning bit by bit 🙁

  4. 14th September 2018 / 3:00 pm

    Thanks for raising awareness fo Celiac disease. I never knew that people with Celiac could react to gluten in body care products, or that there even was gluten in body care products. I hope with the gluten-free products your daughter’s skin will start to heal. #PoCoLo

    • Claire
      Author
      16th September 2018 / 4:54 pm

      Thanks for stopping by. I had not thought of it until now.

  5. Dani Chapman
    16th September 2018 / 4:44 pm

    My son was also diagnosed with Celiac Disease last year. It is hard here in the States as well to find places to eat. We went to Subway and he was asking the girl if they had gluten free bread. They did and she knew about Celiac Disease because her mom has it! She immediately cleaned her hands and got new gloves and cleaned her workspace to avoid cross-contamination! We almost cried! While I am sad that her mom has it we were so happy that she was taught how to prepare food safely!

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